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1,095 replies, Replies 981 to 990

I really hate how my mam waits to tell me stressful information when there's no one here to support me emotionally or to help fix the problem.

I'll likely stop being able to come here for a while as being online making me very poorly.

Makes my legs feel tensed.. paralysis can crecreep up my body and stay for unknown lengths of time whilst aching all over. Needing to have eyes shut and no sound and no company. Breathing probs, heart probs.. slower breathing.. low BP.. hypoglycaemia... exhausted.

Paralysis is the worst. Head symptoms.. cognition neurological.. involuntary movements.. visual disturbances.. vertigo... so much more.

I get so sick of talking about illness but can't enjoy life because of it.

Undoing my treatment by being here. The bit that gets done anyway.

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I really hate how my mam waits to tell me stressful information when there's no one here to support me emotionally or to help fix the problem.

I could do with information on human rights act, for the right to choose my own treatment.


There is no treatment for M.E on our health services unless I go private.

I've already had to pay about ยฃ1500 - ยฃ2000 on tests and need to go Lyme tests too.

I'm considering a solicitor but don't know how much that would cost and I'm scars incase I run out of money.

I have my benefit assessments later this year and nd chances are that no one will be able to help me with them. They generally don't belueve in M.E either.

They put people with M.E in psych wards and give psychological treatment. But M.E is a physiological illness.

It's like telling someone with a broken leg to walk on it to make it better and think positively. And if it doesn't heal then you aren't trying hard enough.

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So I am a Athiest, what now?

Good night @BA1

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I really hate how my mam waits to tell me stressful information when there's no one here to support me emotionally or to help fix the problem.

I just can't get a better quality of life without support and the government don't want to give it because of money it costs

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I really hate how my mam waits to tell me stressful information when there's no one here to support me emotionally or to help fix the problem.

soco wrote:
What makes the communicating difficult? And what can be done to improve it?

I have M.E and loads of complex struggles.

I have speech and language therapist assessing me. But they're taking way too long.

And I need social care to assist me to communicate.

I can't apply for more social care until S&L have finished assessing me.

My GP won't help speed up the assessment.

So I'm trying to ask private Dr to ask CCG for funding for them.

I'm 6st 7 cos I struggle.

But I fluctuate ALL THE TIME to a degree that people have to see it to believe it. My carers are the only ones who have really witnessed it and seen me struggling to breath and paralysed ect they have seen me cry out and bite things in my mouth to try and cope with discomfort.

I used to feel like my teeth were wobbly cos of biting down so much. So I tried a baby dummy to bite down on lol

Previous to that I used to bite my arm to try armed distract myself from the rest of my body. And I've tried biting rolled up kitchen roll in my mouth. Holding objects in my hands and trying to squeeze them a little.

I lay on the floor for 2 hours a few months ago.

And I've had heart failure symptoms before and my GP doesn't understand. And it frightens him that he doesn't understand so he doesn't really want the responsibility of me.

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This was my coworkers children and niece, i don't care if its not allowed, but I want everyone on Social Media to spread it throught the country or world......

Mam, 3 kids, niece and calia. Unsure who calia is.

2 kids and the niece died x

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So I am a Athiest, what now?

๐Ÿ˜Š

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I really hate how my mam waits to tell me stressful information when there's no one here to support me emotionally or to help fix the problem.

The best way to deal with my mental health would be to have the care I need you tske care of me. I'm so severely neglected and in don't have care I need to follow treatment to get better.

But cos of my illness I don't respond well to antidepressants. I'm ok with this one.

But I'd feel better if I has hope of my future changing.

My hair is matted. I haven't jad a bedbath since April last year. I have no quality of life. I been in bed since January last year.

I don't have the energy to enjoy life. Not through depression but from M.E. but having no life makes me depressed.

Being abuses and neglected by various people and little hope of a better future

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I really hate how my mam waits to tell me stressful information when there's no one here to support me emotionally or to help fix the problem.

I mean the private Dr listens but others may not listen to her

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I really hate how my mam waits to tell me stressful information when there's no one here to support me emotionally or to help fix the problem.

Thing is that communicating is extremely difficult and I don't have right support to do it.

And so many problems with healthcare people that I don't feel able to go to them.

Trying y9 get help from a private Dr but whether they will listen is another matter.

The district nurses won't listen.

The medics treated me like shot as well as hospital staff.

And social services.

And the manager up the surgery.

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