Hyperacusis
Difference between Orthostatic intolerance and POTS
Dysautonomia
Transient
Dyspagia
Hyperesthesia
Ganglionitis
Aphasia
Ataxia
Parathesia
Disequilibrium
Proprocetion
Facial palsy (I mean half my face droops sometimes but then goes back to normal so does this count as this word?)
Palindromic
Stupor

Stupor is me! Quite often

Thanks u two

My brain doesn't work properly and I told people at beginning of post. Why r people not listening to me😭😭😭 people don't listen.

Why r people confusing me 😭😭 it's not funny and it makes my life harder.

I'm telling the truth. I really really struggle 😭😭😭

Thank u soco

its funny how sometimes I’m better at helping others than helping myself.

dissociation
the splitting off of a group of mental processes from the main body of consciousness, as in amnesia or certain forms of hysteria.

Depersonalisation
a state in which one no longer perceives the reality of one's self or one's environment.

Cognitive dissonance
anxiety that results from simultaneously holding contradictory or otherwise incompatible attitudes, beliefs, or the like, as when one likes a person but disapproves strongly of one of his or her habits.

Ostracism
exclusion, by general consent, from social acceptance, privileges, friendship, etc.
(in ancient Greece) temporary banishment of a citizen, decided upon by popular vote.

syncope

1.
MEDICINE
temporary loss of consciousness caused by a fall in blood pressure.
2.
GRAMMAR
the omission of sounds or letters from within a word, for example when library is pronounced ˈ

Ok so using this space like Word since i cant access aword programme right now..i need to do this for private dr and can print it out and send........

Heart & breathing

Symptoms

Ive had heart palpatations.
Heart has physically ached with lactic acid,
I have felt like my heart was being squeezed.
Angina
Heart has felt very weak,
Low blood pressure

Gasping
Laboured breathing
Short shalllow ineffective breaths
Heart has felt hot before and as if on fire or in deep fat fryer.

POTS and/or Orthostatic Intolerance: feeling more unwell when sitting up and needing to lie doen to make feel better. Feeling more unwell by standing and walking, especially the longer i do it which is a very short period of time and i cannot walk far at all. (Mostly only transfers)legs start to feel like jelly and sort of ache and can then give way and end up on the floor. I get a desperate need to sit down quickly before i fall down. Sometimes falling beofre i can sit down.
Walking standing, sitting up can make me feel dizzy or breathless/more breathless and increase hear rate, as well as neurological symptoms (such as involutary movements), and make feel like im going to passout.sometimes standing makes my vision go black and face feel cold, sometimes i fall when feeling like this and have to wait for vision to come back beofore i can try to get back up.

Heart rate- the slighest exertion can increase heart rate.sensory stimulation can cause this, even just the slightest, even someone just walking up stairs can increase heart rate which is not anxiety driven or when someone has gently bushed their leg aainst the bed.
It is very difficult for me to get a resting blood pressure rating because just moving my hand whilst laying down still has increased heart rate before and having someone in the room to assist has increased it too.

Pain in chest upon inhailtion, this doesnt happen in the heart area.

I have felt that ive had skipped heart beats and additional heart beats in the past, althoughi cant remember how long ago.

I have at times felt a flutter in my heart, i cant remember when and/or frequency.

I suspect i may have heart rate invariability between day and night but have never had tests done for this.

My heart and breathing symptoms fluctuate and are not alwasy there.

My chest has felt restricted to fully inhail and sort of tight at times. The tightness isnt helped very much by an inhailer. And when having the restricted feeling i do not use inahiler. I rarely use inhailer. Throat can also feel restricted and somewhat tight at times, so harder to inhail.

Nervous Breakdown

Last year after CHC assessment was done unfairly and incorrectly i had a nervous breakdown, as I felt they didnt believe i was sick. I scored more points for psychology than anything else. I felt like they thought i wasnt sick enough.

I seeked support from a friend and then found out her dad had hung himself, which made nervous breakdown worse. (But made suicide feel no longer an option for me)

Whilst going through nervous breakdown i was having prolonged heart palpatations for quite some time. I cant remember how long. My sleep was bad. But one day palpatations stopped quite suddenly and the strength of my heatbeats dropped dramatically suddenly.

I felt a deep calmness that Id never felt before. I felt so at peace. I have never felt such peace in my entire life. My heart felt so weak and my breathing was very slow and very shallow (i think the most shallow it had ever been) and surprising didnt make me gasp at any time (where as other occassions i have ended up gasping, this was only time where i didnt). My entire body was paralysed including my face and eye muscles. I couldnt open my eyes. I couldnt alert anyone how i was feeling and i was alone.
I reflected on my hurt times through my life and people who had done me wrong and somehow it just felt so insignificant now and that they didnt matter anymore. All the hurt was insignificant and was no longer there. I felt a sense of forgiveness to those people. I felt like they just didnt understand what they were doing and that it wasnt their fault. I thought of those who would miss me, i felt so weak and fading, drifting away as if i was going to fall asleep and that it was my time to go. I felt a mild sadness, but didnt have energy to feel any strong emotions or any other emotions. I felt deeply peaceful and a mild sadness. Thinking of how my family would feel about my leaving the world.imagining their reactions to finding out i was dead. I was thinking, i dont want to go yet. And asking god in my mind to keep me here, although without much emotion and thoughts in my mind were slow and an effort.
I was wondering if i would fade away or come back.

I relaxed my mind and decided not to think and just exist.

Eventually my breathing started to get abit easier. And my body became able to move slightly more and heart began to feel less weak.

Family Risks

My sister has heart problems
My grandad on mams side has had heart attacks before and has a pacemaker
My uncle on dads side has had afew heart attacks
My great uncle on my mams side had heart problems before.

Visit to nurses

Even when i was at surgery afew years ago whilst feeling breathless and very unwell, weak and struggling to walk, whilst i was having ECG done, it was still normal and we did a breathing test (the one for asthema that you blow hard into) aand it was normal too but the nurses were concerned about me. I felt ver y unwell.

Venlafaxine

About febuary 2018 when i was on 150mg of Venlafaxine I became very aggitated and anrgy towards my mams inattentiveness and frustrations of my body, i felt like ripping my hair out and felt like punching myself in the head. But i fought these feelings. The next thing i knew was i could hear screaming, mine. I was then in the kitchen shouting at my mam. I then came back to bed and lay down. Crying and my heart ached so bad and i had some angina in it, my heart felt hot and like it was burning and i was very breathless.
Id felt increasly agitated on 150 mg, so i reduced back down to 75mg which seemed to help. (I dont take that tablet at all anymore)
I also cant take amytriptlene for similar reasons, made me feel suicidal.

I have ended up paralysed lay on my front and unable to get myself into better breathing position independetly.

Medic visit 1

I felt an inability to breath effectively. I tried abdonial breathing but my muscles wouldnt work. I was only able to take very shallow breaths in my upper chest.my whole body was shaking violently. I could not control this and i did not feel that it was anxiety driven. Although it did cause anxiety. i felt like i was going to die and praying in my mind for medics to hurry up arriving.

I was unable to call 999 myself and relyed on (now ex) partner to do it.my speech ability with medic was very limited and both of them had to turn me to use stephascope on my back. It was difficult to answer questions my partner was asking on behalf of operator.

This medic note this time said i had 28 respiratory rate and normal beside it. This is because he asked me at the time is my breathing was usually like that and i dont think i fully understood the question or how to answer and i felt under pressure to answer the question on the spot, so i said yes, but i think i change my mind. That breathing rate is not normal.

He offered for me to go into hospital but i thought it would make me more unwell and didnt know what good it would do for me, so i declined.

Its ok. I think i was just having a really bad day. And i was already upset before i came on that day too. I think its just because of what im going through. I think i knew you didnt mean to be upsetting and you meant well. I think its just cos i struggle.

Thanks for caring about me and coming back to say that though. Thank you (hugs)

Thank you for trying to cheer me up. Sorry i got so upset.

@SmartAZ i think sometimes i get those times where i just cry over anything and everything.

For ages i will keep my feelingspushed down and focus onproblem solving my life.. but then eventually the tears have to come out.

I think its cos ive had so much disbelief of what ive gone through and so many have treated me like ****shit, i just get ubber sensitive sometimes cos those times have been really traumatic before and even put my life in danger.

Its probably not you. Its probably more so me and my experiences.

I think its cos ive ben really worried about my friends and family too. 2 of my friends are fighting for their lives.

And then theres so much more on top. It just all adds up and then smaller thinsg end up feeling so much bigger than hey actually are.

Thank you. You are right there with deficiencies. My stool test showed that I i have too many aerobic microbes and not enough anaerobic microbes. I had excess fat in my stools and i had many fibre particles in stools.

So im not digesting food properly and this leading to deficiencies.

But i also have hypothyroid and i suspect afew other problems.

Deficiencies cause my mitochondria to not have enough ingredients for making energy. Poor fuel/poor energy delivery mechanisms.

Ive got some B vitamins. Thank you :)

I have injections for self injecting B12. Ive ben trying to get the NHS nurses to come and help with them and the magnesium ones but because they arent on NHS they dont want to do them, despite that im the one paying for them. Im not always physically capable do self inject but i do know how, but ive not given up trying to get them to do them.

I think there’s a human right out there that will back me up.
And if i have capacity then i have the right to choose my own treatment.

Dysarthria
Aphasia
Dysphasia
Aphonia

@BA1 @Gone @soco

Im still trying to get support letter done. Benefit forms are here and need handing in 28th this month :(

I didnt invite 1 user. I invited 3