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Araz
last online: 12/14, 0:56
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My grandma has advanced Alzheimer’s disease, so for my birthday this year, I’m trying to raise awareness for the cause.

If you have Facebook and feel inclined to do so, please donate to my fundraiser for the Alzheimer’s Society. https://www.facebook.com/donate/396774784559334...

There is, of course, no pressure to donate. For those of you who have family members or friends who have Alzheimer’s disease or dementia and wish to talk about it, this is also a good space to do so.

Seeing a loved one lose everything- starting from their memories to their sense of self - is the most difficult thing you can go through second to experiencing it firsthand.

I’m here for those of you and would be willing to speak about my experience with this as well.

Thanks 🙏🏼❤️

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Since writing this post Araz may have helped people, but has not within the last four (4) days.
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speak, experience, donate, disease, alzheimers
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Inbound1896536404
Gone
last online: 05/14, 23:04
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My grandma thought I was a stranger. Soo soo sad

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Araz
last online: 12/14, 0:56
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aeolians.revenge wrote:
My grandma thought I was a stranger. Soo soo sad

My grandma stopped recognizing who I was almost two years ago :( I’m sorry your grandma had Alzheimer’s too. It is very depressing to see someone close to you go through this.

Electric
BA1
last online: 01/25, 20:20
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Yeah. Been down this road a long time ago. The tough part about them not recognizing you is when they they turn around and ask if you've seen yourself, lately....

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Araz
last online: 12/14, 0:56
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Slash wrote:
Yeah. Been down this road a long time ago. The tough part about them not recognizing you is when they they turn around and ask if you've seen yourself, lately....

That was really hard, I think on my dad more than anyone else.

I’m sorry you went through this. :(

Electric
BA1
last online: 01/25, 20:20
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Araz wrote:

Slash wrote:
Yeah. Been down this road a long time ago. The tough part about them not recognizing you is when they they turn around and ask if you've seen yourself, lately....

That was really hard, I think on my dad more than anyone else.

I’m sorry you went through this. :(

Thank you for your consideration. But, that's ancient history for me - I'm lucky though because my parents died under different circumstances.
However, 2 of my 4 grandparents had Alzheimer's. Growing up, I had no brothers or sisters BUT I had 1st cousin who was less than two weeks younger than me. She had two brothers later on in life so, in the ranks of things, were the first and oldest children regarding our grandparents - we got the best of our grandparents and didn't have to "share" with any of the younger. Then again, it hurt the most in the way they went.

More to the point, try not to feel as though you are alone with this situation. You're doing a fine job. Just remember the old saying when it comes to charity work - generosity begins at home.

My birthday was last Sunday. When is yours, my dear girl?

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Araz
last online: 12/14, 0:56
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@BA1 you are lucky you got to spend time quality time with them. This is the worst disease I can think of because it takes away your mind - and I know how hard it is to see it firsthand just like you.

Thank you for the kind words and I will try to do my best.

Happy belated birthday! I’m 9/18 :)

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BigWilly!
last online: <time class="timeago" datetime="1712698270" title="Apr 9, 2024 21:31">Apr 9, 2024 21:31</time>
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My mom has early onset dementia, basically babbles & plays with dolls, and my dad no longer recognizes me (they're both in the same institution). Luckily, my mom still DOES recognize me, but can't effectively communicate. It's truly a terrible affliction and it's hard to see them losing parts of their selves.

Yorick
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last online: 02/28, 23:53
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thoughts n prayers.. i got a 92 yr old gram with dementia/alzheimer. ur not alone there.

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Araz
last online: 12/14, 0:56
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BigWilly! wrote:
My mom has early onset dementia, basically babbles & plays with dolls, and my dad no longer recognizes me (they're both in the same institution). Luckily, my mom still DOES recognize me, but can't effectively communicate. It's truly a terrible affliction and it's hard to see them losing parts of their selves.

Oh man, Willy, I’m so sorry, I can’t imagine what you must be going through with both parents having some form of dementia. You say early onset? My grandma is 89. Do they seem happy? Grandma was super upset in the beginning and she still has her moments but has calmed down quite a bit.

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Araz
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Yorick wrote:
thoughts n prayers.. i got a 92 yr old gram with dementia/alzheimer. ur not alone there.

Thank you for your kind words. My grandma is just slightly younger than yours. I hope your grandma is having “good” days 🙏🏼

Inbound1896536404
Gone
last online: 05/14, 23:04
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I studied nootropics. Aka smart drugs. Please look into these options. No guarantees but they seem to work if you catch it early.

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BigWilly!
last online: <time class="timeago" datetime="1712698270" title="Apr 9, 2024 21:31">Apr 9, 2024 21:31</time>
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Araz wrote:

Oh man, Willy, I’m so sorry, I can’t imagine what you must be going through with both parents having some form of dementia. You say early onset? My grandma is 89. Do they seem happy? Grandma was super upset in the beginning and she still has her moments but has calmed down quite a bit.

My mom seems happy enough, having regressed to a childlike state (and on meds), but my dad is far less accepting of his cognitive decline. My mom started going downhill in her late 50's, getting progressively worse til she had a psychotic break and had to be hospitalized. My dad was able to mask his deterioration til then, but went rapidly downhill shortly after. Right now they're both in one of the better government subsidized Alzheimer's facilities. I don't see them often, being nomadic and close to 300 miles away, but can really notice the progressive changes when I do.

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Jetmoo
last online: 11/13, 0:06
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I used to be a care assistant so I have seen many with dementia, alzheimers and other illnesses.

I know of things that can help too but they're not publicised very much. All for the greed of Big Pharma.

I feel resentful towards those greedy who rather take the money than save people.

My carers dad has just died from cancer. I gave her some information from the book of my private doctor that possibly could have helped him. With research references and I bet they did not take it into account.

It's always up to the sick to get themselves well. As it has been for me.

I'm sorry about your grandma. I'm sorry about all those who suffer and are left with no options.

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Jetmoo
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I know a bunch of supplements that could help but they're not cheap.

I'd recommend Veg EPA. I take a lot of supplements but that has by far been the one I've felt most difference from. It's helped MASSIVELY with my cognition.

I'm not able to follow my treatment properly to be fair, cos lack of carer time. But Veg EPA is amazing

If u wanna ask my thoughts on anything please feel free.

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Jetmoo
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aeolians.revenge wrote:
I studied nootropics. Aka smart drugs. Please look into these options. No guarantees but they seem to work if you catch it early.

I've not heart of these before. What are smart drugs?

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Jetmoo
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If u want to know some things that contribute to people getting dementia or alzheimers then just ask.

I don't have much faith in scientists and researchers to always do what is ethically right. Sometimes but not always..

I personally don't understand why they don't take the knowledge that is already out there and use it to help people.

But it is the same with my illness. Some don't like looking at research that is already available out there. They ignore it as if it doesn't exist.

If we know causes then why not take the causes out of our lives? Why not reverse it?

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BigWilly!
last online: <time class="timeago" datetime="1712698270" title="Apr 9, 2024 21:31">Apr 9, 2024 21:31</time>
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There's a study that just came out wherein they found that a common drug used to treat diabetes could actually enable brains to regenerate and repair damage via dormant stem cells. One caveat is that it requires a higher level of estrogen to be present, so guys are hooped unless they lose the 'family jewels'.

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my aunt died of alzheimers.
i can't even talk about this. it wouldn't help you or me.

but i definitely applaud you for raising awareness. it needs to be raised.

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