Wil someone read letter for my GP I wrote and tell me if its ok or not and tell me how to use less words?
Dear Dr ,
As you know I have cognition difficulties and struggle to have multiple people in my care. There is no discrimination. I had requested to have one nurse also and having new carers is a very difficult gradual process. I have had about 7 different social workers already which is very hard for me. I have difficulties processing so many different people and social situations. It affects my understanding of what is going on and makes it harder for me to make informed decisions.
I have test results that shows I am unwell, although I do not believe I am fully diagnosed. I would like eventually, when misunderstandings been resolved, to have the serology testing that you offered me. It was misunderstood that I declined all serology testing. I only declined testing for Lyme disease as I’ll be paying for this myself. Serraspot and Elispot testing for Lyme are known to give more accurate results. Please can I, in time, have serology testing?
You believe M.E is a physical illness, but I do not think you understand or believe the full extend of how badly it affects me. You noted that my ECG was likely elevated due to stress. M.E is known to affect the heart and breathing. You also said it was inappropriate for me to ask you for CCG funding to allow longer appointments to communicate with SALT. I disagree that it was inappropriate.
M.E affects how I process information and under time pressure I can process incorrectly and then respond inappropriately which is partially why I need carers to support me with communication. M.E affects how I process information and under pressure I cannot process my understanding correctly given in a short amount of time, only to respond inappropriately which is partially why I need the people that assist and support me with cooperative communication. This is partially why I do not respond well when I am under pressure to make decisions quickly, such as the words in the way I speak. This happens most during 2 way speech interactions. M.E can make me come across as offensive and has resulted in relationship breakdowns.
We believe I have aspergers. Please can we arrange a meeting with yourself, Debbie (who is also a disabilities nurse), my mam and sister to discuss this? I think that the cognition struggles amplify aspergers and make it even harder to express myself appropriately. I can become very overwhelmed and distressed from sensory overload and time pressure of processing language and this all overloads me. Even the amount of visual stimuli in my room has at times caused meltdowns.
You have said you do not understand my test results and could not offer the support I needed. Please seek guidance from Dr Myhill to learn about the test results and their implications. Without understanding my test results, I am being left in a dangerous position. Without NHS being able to understand my test results I feel unsafe and that you do not know how best to support me and nor does anyone else in the NHS.
Yours sincerely,
Jessica
Wil someone read letter for my GP I wrote and tell me if its ok or not and tell me how to use less words?
Thank you ❤️
Wil someone read letter for my GP I wrote and tell me if its ok or not and tell me how to use less words??¬
¬
Dear Dr , ¬
¬
You know I have cognition difficulties and struggle to have multiple people in my care. There is no discrimination with this. I had requested to have one nurse also and having new carers is a very difficult and gradual process. I have had about 7 different social workers already which has been very hard for me.¬
¬
I have difficulties processing so many different people and social situations. I only approach people who I trust. The experience of having M.E has been highly traumatic. It is very distressing when I have come across people do not believe I am struggling the way I say I do and when people underestimate how M.E affects me. ¬
¬
Many people I have been in connection with throughout my illness have treated me with stigma of me being mentally ill. This is not limited to professionals. But professionals have told me before that my breathing struggles was nothing physiological when i know for a fact it was not mental health related. I am aware what panic attacks feel like and I recognise when it is not one. I have been denied home visits when I had told Esh winning Drs that I was struggling to even crawl around my house, because of my age and illness.¬
¬
Paramedics treated me as if I was a prank caller wasting their time when I was genuinely very unwell and frightened that I was going to die. It was written in my notes there was no medical cause identified. I think this has led people to think I am not physiologically unwell. When I was in hospital they did not do blood tests or any in-depth testing to find out what was causing me to be so unwell. I believe this is because of the stigma of my illness as being mental.¬
¬
I now have test results that show I am unwell physiologically, although I do not believe I am fully diagnosed. I would like eventually, when misunderstandings have been resolved, to have the serology testing that you offered me. It was misunderstood that I declined all serology testing. I only declined testing for Lyme disease as I’ll be paying for this myself. Serraspot and Elispot testing are known to give more accurate results.¬
¬
You believe M.E is a physical illness, but I do not think you understand or believe the full extend of how badly it affects me. You noted that my ECG was likely elevated due to stress. M.E is known to affect the heart and breathing. You also said it was inappropriate for me to ask you for CCG funding to allow longer appointments to communicate with SALT. I disagree that it was inappropriate. ¬
¬
I feel as though judgements are being made on me on a personal level. I am a very caring person. I tend to put others before myself which is partly why I relapsed. I am a very affectionate person and I have a lot of love to give. This world needs a lot more love in it. I am not this person I feel you and others are seeing me as. M.E affects how I process information and under time pressure I can process incorrect and then respond inappropriately which is why I need carers to support me. This is partially why I do not respond well when I am put in a position where I feel pressured to make decisions quickly, such as the words I speak or manner of how I do it. My illness can make me come across as offensive and has cost me personal relationships as well.¬
¬
I sense that you may be considering that I may have borderline personality disorder, along side having M.E. Is this the case? If so, I can assure you that in my teen years I spent many hours searching online trying to find out what was wrong with me. I got bullied a lot at school and I struggled to make friends. I have already come across BPD and I did and still don’t think I have it.¬
¬
My sister’s child has Autism. Me and her fell out afew years ago. When I relapsed and she soon discovered how absolutely distort I had been. She then realised I was genuinely upset and not meaning to be offensive. She eventually said to me, she thinks I might have aspergers. I was initially offended by this. But after finding out more about it, I feel that it was the missing puzzle piece for all the questions I have had about myself all my life. Everything now makes sense. I think that the cognition struggles amplify aspergers and make it even harder to express myself appropriately. I can become very overwhelmed and distressed from sensory overload and time pressure of processing language and this overloads me. I think I can have meltdowns from it. ¬
¬
I have had problems forming new relationships and struggled to make many but once formed I have been able to maintain them for years. But when I got M.E my relationships broke down. Before the last relapse I tried to mix with others and make friends and instead had multiple people take advantage of me. It has been dangerous at times. I’m very vulnerable and want my carers to be there to monitor and support me to have relationships safely, professionals included.¬
¬
I have been put in dangerous positions afew times and I have been mistreated by person’s who did not understand my illness. ¬
¬
You have said you do not understand my test results and could not offer the support I needed. Please seek guidance from Dr Myhill to learn about the test results and what they mean. Please take time to understand my illness. I do not hold it against NHS for having a lack of understanding. The lack of understanding has stemmed from the PACE trial research that has now been debunked. This was all discussed in the House of Commons. Graded exercise therapy has been said to be inappropriate treatment for those with M.E, but you have mentioned me having GET twice, despite us telling you it is unsafe. Please seek guidance from Dr Myhill to find out why. ¬
¬
Without the support I require I am left in a dangerous position. Without NHS being able to understand my test results I feel unsafe. I feel unsafe to have other Drs as they are not aware of my needs. I struggle with trusting people because I am a vulnerable adult and Id rather I had you as my GP.¬
¬
I have always been able to choose which Dr comes on home visits or any appointments. What has prompted this change? Please reconsider it.¬
¬
In respect of me being seen in a negative light as being demanding, I would like to say that I am being assertive and determined for good reason. When I act out of character it is for good reason. I do not like to cause anyone trouble and in fact my dependency on others makes me feel guilty.
I’ve edited the post to include it
Thank you both
Without NHS being able to understand my test results I feel unsafe.
**I feel even more unsafe to have other Drs as they have always had less understanding of M.E than yourself.** I struggle with trusting people because I am a vulnerable adult and Id rather I had you as my GP.
Do you think that change sounds better?
Wil someone read letter for my GP I wrote and tell me if its ok or not and tell me how to use less words?¬
¬
Dear Dr , ¬
¬
, ¬
¬
I am writing in response to the letter you sent dated _____. ¬
¬
You know I have cognition difficulties and struggle to have multiple people in my care. There is no discrimination with this. I had requested to have one nurse also and having new carers is a very difficult and gradual process. I have had about 7 different social workers already which has been very hard for me.¬
¬
I have difficulties processing so many different people and social situations. I only approach people who I trust. The experience of having M.E has been highly traumatic. It is very distressing when I have come across people do not believe I am struggling the way I say I do and when people underestimate how M.E affects me. ¬
¬
Many people I have been in connection with throughout my illness have treated me with stigma of me being mentally ill. This is not limited to professionals. But professionals have told me before that my breathing struggles was nothing physiological when i know for a fact it was not mental health related. I am aware what panic attacks feel like and I recognise when it is not one. I have been denied home visits when I had told Esh winning Drs that I was struggling to even crawl around my house, because of my age and illness.¬
¬
Paramedics treated me as if I was a prank caller wasting their time when I was genuinely very unwell and frightened that I was going to die. It was written in my notes there was no medical cause identified. I think this has led people to think I am not physiologically unwell. When I was in hospital they did not do blood tests or any in-depth testing to find out what was causing me to be so unwell. I believe this is because of the stigma of my illness as being mental.¬
¬
I now have test results that show I am unwell physiologically, although I do not believe I am fully diagnosed. I would like eventually, when misunderstandings have been resolved, to have the serology testing that you offered me. It was misunderstood that I declined all serology testing. I only declined testing for Lyme disease as I’ll be paying for this myself. Serraspot and Elispot testing are known to give more accurate results.¬
¬
You believe M.E is a physical illness, but I do not think you understand or believe the full extend of how badly it affects me. You noted that my ECG was likely elevated due to stress. M.E is known to affect the heart and breathing. You also said it was inappropriate for me to ask you for CCG funding to allow longer appointments to communicate with SALT. I disagree that it was inappropriate. ¬
¬
I feel as though judgements are being made on me on a personal level. I am a very caring person. I tend to put others before myself which is partly why I relapsed. I am a very affectionate person and I have a lot of love to give. This world needs a lot more love in it. I am not this person I feel you and others are seeing me as. M.E affects how I process information and under time pressure I can process incorrect and then respond inappropriately which is why I need carers to support me. This is partially why I do not respond well when I am put in a position where I feel pressured to make decisions quickly, such as the words I speak or manner of how I do it. My illness can make me come across as offensive and has cost me personal relationships as well.¬
¬
I sense that you may be considering that I may have borderline personality disorder, along side having M.E. Is this the case? If so, I can assure you that in my teen years I spent many hours searching online trying to find out what was wrong with me. I got bullied a lot at school and I struggled to make friends. I have already come across BPD and I did and still don’t think I have it.¬
¬
My sister’s child has Autism. Me and her fell out afew years ago. When I relapsed and she soon discovered how absolutely distort I had been. She then realised I was genuinely upset and not meaning to be offensive. She eventually said to me, she thinks I might have aspergers. I was initially offended by this. But after finding out more about it, I feel that it was the missing puzzle piece for all the questions I have had about myself all my life. Everything now makes sense. I think that the cognition struggles amplify aspergers and make it even harder to express myself appropriately. I can become very overwhelmed and distressed from sensory overload and time pressure of processing language and this overloads me. I think I can have meltdowns from it. ¬
¬
I have had problems forming new relationships and struggled to make many but once formed I have been able to maintain them for years. But when I got M.E my relationships broke down. Before the last relapse I tried to mix with others and make friends and instead had multiple people take advantage of me. It has been dangerous at times. I’m very vulnerable and want my carers to be there to monitor and support me to have relationships safely, professionals included.¬
¬
I have been put in dangerous positions afew times and I have been mistreated by person’s who did not understand my illness. ¬
¬
You have said you do not understand my test results and could not offer the support I needed. Please seek guidance from Dr Myhill to learn about the test results and what they mean. Please take time to understand my illness. I do not hold it against NHS for having a lack of understanding. The lack of understanding has stemmed from the PACE trial research that has now been debunked. This was all discussed in the House of Commons. Graded exercise therapy has been said to be inappropriate treatment for those with M.E, but you have mentioned me having GET twice, despite us telling you it is unsafe. Please seek guidance from Dr Myhill to find out why. ¬
¬
Without the support I require I am left in a dangerous position. Without NHS being able to understand my test results I feel unsafe. I feel unsafe to have other Drs as they are not aware of my needs. I struggle with trusting people because I am a vulnerable adult and Id rather I had you as my GP.¬
¬
I have always been able to choose which Dr comes on home visits or any appointments. What has prompted this change? Please reconsider it.¬
¬
In respect of me being seen in a negative light as being demanding, I would like to say that I am being assertive and determined for good reason. When I act out of character it is for good reason. I do not like to cause anyone trouble and in fact my dependency on others makes me feel guilty.
Wil someone read letter for my GP I wrote and tell me if its ok or not and tell me how to use less words?¬
¬
Dear Dr , ¬
¬
I am writing in response to the letter you sent dated _____. ¬
¬
You know I have cognition difficulties and struggle to have multiple people in my care. There is no discrimination with this. I had requested to have one nurse also and having new carers is a very difficult and gradual process. I have had about 7 different social workers already which has been very hard for me.¬
¬
I have difficulties processing so many different people and social situations. I only approach people who I trust. The experience of having M.E has been highly traumatic. It is very distressing when I have come across people do not believe I am struggling the way I say I do and when people underestimate how M.E affects me. ¬
¬
Many people I have been in connection with throughout my illness have treated me with stigma of me being mentally ill. This is not limited to professionals. But professionals have told me before that my breathing struggles was nothing physiological when i know for a fact it was not mental health related. I am aware what panic attacks feel like and I recognise when it is not one. I have been denied home visits when I had told Esh winning Drs that I was struggling to even crawl around my house, because of my age and illness.¬
¬
Paramedics treated me as if I was a prank caller wasting their time when I was genuinely very unwell and frightened that I was going to die. It was written in my notes there was no medical cause identified. I think this has led people to think I am not physiologically unwell. When I was in hospital they did not do blood tests or any in-depth testing to find out what was causing me to be so unwell. I believe this is because of the stigma of my illness as being mental.¬
¬
I now have test results that show I am unwell physiologically, although I do not believe I am fully diagnosed. I would like eventually, when misunderstandings have been resolved, to have the serology testing that you offered me. It was misunderstood that I declined all serology testing. I only declined testing for Lyme disease as I’ll be paying for this myself. Serraspot and Elispot testing are known to give more accurate results.¬
¬
You believe M.E is a physical illness, but I do not think you understand or believe the full extend of how badly it affects me. You noted that my ECG was likely elevated due to stress. M.E is known to affect the heart and breathing. You also said it was inappropriate for me to ask you for CCG funding to allow longer appointments to communicate with SALT. I disagree that it was inappropriate. ¬
¬
I feel as though judgements are being made on me on a personal level. I am a very caring person. I tend to put others before myself which is partly why I relapsed. I am a very affectionate person and I have a lot of love to give. This world needs a lot more love in it. I am not this person I feel you and others are seeing me as. M.E affects how I process information and under time pressure I can process incorrect and then respond inappropriately which is why I need carers to support me. This is partially why I do not respond well when I am put in a position where I feel pressured to make decisions quickly, such as the words I speak or manner of how I do it. My illness can make me come across as offensive and has cost me personal relationships as well.¬
¬
I sense that you may be considering that I may have borderline personality disorder, along side having M.E. Is this the case? If so, I can assure you that in my teen years I spent many hours searching online trying to find out what was wrong with me. I got bullied a lot at school and I struggled to make friends. I have already come across BPD and I did and still don’t think I have it.¬
¬
My sister’s child has Autism. Me and her fell out afew years ago. When I relapsed and she soon discovered how absolutely distort I had been. She then realised I was genuinely upset and not meaning to be offensive. She eventually said to me, she thinks I might have aspergers. I was initially offended by this. But after finding out more about it, I feel that it was the missing puzzle piece for all the questions I have had about myself all my life. Everything now makes sense. I think that the cognition struggles amplify aspergers and make it even harder to express myself appropriately. I can become very overwhelmed and distressed from sensory overload and time pressure of processing language and this overloads me. I think I can have meltdowns from it. ¬
¬
I have had problems forming new relationships and struggled to make many but once formed I have been able to maintain them for years. But when I got M.E my relationships broke down. Before the last relapse I tried to mix with others and make friends and instead had multiple people take advantage of me. It has been dangerous at times. I’m very vulnerable and want my carers to be there to monitor and support me to have relationships safely, professionals included.¬
¬
I have been put in dangerous positions afew times and I have been mistreated by person’s who did not understand my illness. ¬
¬
You have said you do not understand my test results and could not offer the support I needed. Please seek guidance from Dr Myhill to learn about the test results and what they mean. Please take time to understand my illness. I do not hold it against NHS for having a lack of understanding. The lack of understanding has stemmed from the PACE trial research that has now been debunked. This was all discussed in the House of Commons. Graded exercise therapy has been said to be inappropriate treatment for those with M.E, but you have mentioned me having GET twice, despite us telling you it is unsafe. Please seek guidance from Dr Myhill to find out why. ¬
¬
Without the support I require I am left in a dangerous position. Without NHS being able to understand my test results I feel unsafe. I feel more unsafe to have other Drs as they have always had less understanding of M.E than yourself. I feel unsafe to have other Drs as they are not aware of my needs. I struggle with trusting people because I am a vulnerable adult and Id rather I had you as my GP.¬
¬
I have always been able to choose which Dr comes on home visits or any appointments. What has prompted this change? Please reconsider it.¬
¬
In respect of me being seen in a negative light as being demanding, I would like to say that I am being assertive and determined for good reason. When I act out of character it is for good reason. I do not like to cause anyone trouble and in fact my dependency on others makes me feel guilty.
Ok I’ve had some support with it. I’ll share 2nd draft...
.j
Wil someone read letter for my GP I wrote and tell me if its ok or not and tell me how to use less words?¬
¬
Dear Dr , ¬
¬
, ¬
¬
As you know I am writing in response to the letter you sent dated _____. ¬
¬
You know I have cognition difficulties and struggle to have multiple people in my care. There is no discrimination with this. I had requested to have one nurse also and having new carers is a very difficult and gradual process. I have had about 7 different social workers already which has been very hard for me.¬
¬
I have difficulties processing so many different people and social situations. I only approach people who I trust. The experience of having M.E has been highly traumatic. It is very distressinghard when I have come across people do not believe I am struggling the way I say I do and when people underestimate how M.E affects me. ¬
¬
Many people I have been in connection with throughout my illness have treated me with stigma of me being mentally ill. This is not limited to professionals. But professionals have told me before that my breathing struggles was nothing physiological when i know for a fact it was not mental health related. I am aware what panic attacks feel like and I recognise when it is not one. I have been denied home visits when I had told Esh winning Drs that I was struggling to even crawl around my house, because of my age and illness.¬
¬
Paramedics treated me as if I was a prank caller wasting their time when I was genuinely very unwell and frightened that I was going to die. It was written in my notes there was no medical cause identified. I think this has led people to think I am not physiologically unwell. When I was in hospital they did not do blood tests or any in-depth testing to find out what was causing me to be so unwell. I believe this is because of the stigma of my illness as being mental.¬
¬
I now have difficulties processing so many different people and social situations. It affects my understanding of what is going on and makes it harder for me to make informed decisions.¬
¬
I have test results that showshows I am unwell physiologically, although I do not believe I am fully diagnosed. I would like eventually, when misunderstandings have been resolved, to have the serology testing that you offered me. It was misunderstood that I declined all serology testing. I only declined testing for Lyme disease as I’ll be paying for this myself. Serraspot and Elispot testing are known to give more accurate results.¬
¬
You believe M.E is a physical illness, but I do not think you understand or believe the full extend of how badly it affects me. You noted that my ECG was likely elevated due to stress. M.E is known to affect the heart and breathing. You also said it was inappropriate for me to ask you for CCG funding to allow longer appointments to communicate with SALT. I disagree that it was inappropriate. ¬
¬
I feel as though judgements are being made on me on a personal level. I am a very caring person. I tend to put others before myself which is partly why I relapsed. I am a very affectionate person and I have a lot of love to give. This world needs a lot more love in it. I am not this person I feel you and others are seeing me as. M.E affects how I process information and under time pressure I can process incorrect and then respond inappropriately which is why I need carers to support me. This is partially why I do not respond well when I am put in a position where I feel pressured to make decisions quickly, such as the words I speak or manner of how I do it. My illness can make me come across as offensive and has cost me personal relationships as well.¬
¬
I sense that you may be considering that I may have borderline personality disorder, along side having M.E. Is this the case? If so, I can assure you that in my teen years I spent many hours searching online trying to find out what was wrong with me. I got bullied a lot at school and I struggled to make friends. I have already come across BPD and I did and still don’t think I have it.¬
¬
My sister’s child has Autism. Me and her fell out afew years ago. When I relapsed and she soon discovered how absolutely distort I had been. She then realised I was genuinely upset and not meaning to be offensive. She eventually said to me, she thinks I might have aspergers. I was initially offended by this. But after finding out more about it, I feel that it was the missing puzzle piece for all the questions I have had about myself all my life. Everything now makes sense. I think that the cognition struggles amplify aspergers and make it even harder to express myself appropriately. I can become very overwhelmed and distressed from sensory overload and time pressure of processing language and this overloads me. I think I can have meltdowns from it. ¬
¬
I have had problems forming new relationships and struggled to make many but once formed I have been able to maintain them for years. But when I got M.E my relationships broke down. Before the last relapse I tried to mix with others and make friends and instead had multiple people take advantage of me. It has been dangerous at times. I’m very vulnerable and want my carers to be there to monitor and support me to have relationships safely, professionals included.¬
¬
I have been put in dangerous positions afew times and I have been mistreated by person’s who did not understand my illness. ¬
¬
You have said you do not understand my test results and could not offer the support I needed. Please seek guidance from Dr Myhill to learn about the test results and what they mean. Please take time to understand my illness. I do not hold it against NHS for having a lack of understanding. The lack of understanding has stemmed from the PACE trial research that has now been debunked. This was all discussed in the House of Commons. Graded exercise therapy has been said to be inappropriate treatment for those with M.E, but you have mentioned me having GET twice, despite us telling you it is unsafe. Please seek guidance from Dr Myhill to find out why. ¬
¬
Without the support I require I am left in a dangerous position. Without NHS being able to understand my test results I feel unsafe. I feel more unsafe to have other Drs as they have always had less understanding of M.E than yourself. I struggle with trusting people because I am a vulnerable adult and Id rather I had you as my GP.¬
¬
I have always been able to choose which Dr comes on home visits or any appointments. What has prompted this change? Please reconsider it.¬
¬
In respect of me being seen in a negative light as being demanding, I would like eventually, when misunderstandings been resolved, to sayhave the serology testing that you offered me. It was misunderstood that I declined all serology testing. I only declined testing for Lyme disease as I’ll be paying for this myself. Serraspot and Elispot testing for Lyme are known to give more accurate results. Please can I, in time, have serology testing?¬
¬
You believe M.E is a physical illness, but I do not think you understand or believe the full extend of how badly it affects me. You noted that my ECG was likely elevated due to stress. M.E is known to affect the heart and breathing. You also said it was inappropriate for me to ask you for CCG funding to allow longer appointments to communicate with SALT. I disagree that it was inappropriate. ¬
¬
M.E affects how I process information and under time pressure I can process incorrectly and then respond inappropriately which is partially why I need carers to support me with communication. This is partially why I do not respond well when I am put in a position where I feel pressured to make decisions quickly, such as the words I speak or manner of how I do it. This happens most during 2 way speech interactions. M.E can make me come across as offensive and has resulted in personal relationship breakdowns .¬
¬
We believe I have aspergers. Please can we arrange a meeting with yourself, Debbie (who is also a disabilities nurse), my mam and sister to discuss this? I think that the cognition struggles amplify aspergers and make it even harder to express myself appropriately. I can become very overwhelmed and distressed from sensory overload and time pressure of processing language and this all overloads me. Even the amount of visual stimuli in my room has at times caused meltdowns. ¬
¬
You have said you do not understand my test results and could not offer the support I needed. Please seek guidance from Dr Myhill to learn about the test results and their implications. Without understanding my test results, I am being assertiveleft in a dangerous position. Without NHS being able to understand my test results I feel unsafe and determinedthat foryou good reason. When I act out of character it is for good reason. I do not likeknow how best to causesupport anyone trouble and in fact my dependency on others makes me feeland guilty.nor does anyone else in the NHS.¬
¬
Yours sincerely,¬
Jessica
Do u think this sounds ok? Sorry I get anxiety so I like getting reassurance 😅
AS? Awesome! Thank you ❤️😊
heres my edit..
M.E affects how I process information and under pressure I cannot process my understanding correctly given in a short amount of time, only to respond inappropriately which is partially why I need the people that assist me to support me with cooperative communication.
Yorick wrote:
before you had .. you know.. .. then u got the as you know as correct edit.. no.. not AS .. its As
I’m soooo confused!!! 😅
Yorick wrote:
heres my edit..M.E affects how I process information and under pressure I cannot process my understanding correctly given in a short amount of time, only to respond inappropriately which is partially why I need the people that assist me to support me with cooperative communication.
which para was this referring to again?
Yorick wrote:
M.E affects how I process information and under pressure I cannot process my understanding correctly given in a short amount of time, only to respond inappropriately which is partially why I need the people that assist me to support me with cooperative communication.
Compared with....
It’s being awkward 🙀 why is copy and paste on this stupid iPad so awkward!!!!!!!!!! Ahhhhh
Does lack of sleep cause people anxiety?
Para 4
M.E affects how I process information and under time pressure I can process incorrectly and then respond inappropriately which is partially why I need carers to support me with communication. This is partially why I do not respond well when I am put in a position where I feel pressured to make decisions quickly, such as the words I speak or manner of how I do it. This happens most during 2 way speech interactions. M.E can make me come across as offensive and has resulted in personal relationship breakdowns .
copy paste this for paragraph 4
M.E affects how I process information and under pressure I cannot process my understanding correctly given in a short amount of time, only to respond inappropriately which is partially why I need the people that assist and support me with cooperative communication. This is partially why when I do not respond well I am under pressure to make decisions quickly, such as the words in a way I speak. This happens most during 2 way speech interactions. M.E can make me come across as offensive and has resulted in personal relationship breakdowns among my assistants.
It actually HAS resulted in me losing two of my own carers before.
But I can’t say I have personal relationships with my assistants. That would make them look unprofessional
But I would be scared to say my carers have misunderstood me before as it may make my care provider look bad and I don’t want to lose them if social services think they are bad for me.
Should I be putting in about the two carers?
The disabilities nurse carer helps to keep everything under control cos she understands aspergers
Should that be incorporated somehow?
This is partially why when I do not respond well I am under pressure to make decisions quickly, such as the words in the way I speak.
- I feel like this sentence doesn’t quite make sense or that the words are in wrong order
Let’s see...
This is partially why I do not respond well when I am under pressure to make decisions quickly, such as the words in the way I speak.
That’s better 😊 the when was in the wrong place
No I love my carers they are the only ones who understand me.
It’s social services and NHS professionals who treat me like ****
It has taken a very long time for carers to understand me. Well over a year. I’d probablly consider suicide if I had to go through the whole process from scratch with new carers again.
It may have been partially due to me sounding rude as to why social services manager doesn’t like me but that’s because social worker gave me incorrect information.
Social worked said she would help with multiple things and then didn’t so I kept emailing them to help me. I Also wanted to whilstle blow and social worker said she would be then made me wait. and wait.. and wanted to do one visit per month max
My comment didn’t work.. ok the comment worked and help has put it in the wrong order of comments on this thread. That’s strange
Wil someone read letter for my GP I wrote and tell me if its ok or not and tell me how to use less words?¬
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Dear Dr , ¬
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As you know I have cognition difficulties and struggle to have multiple people in my care. There is no discrimination. I had requested to have one nurse also and having new carers is a very difficult gradual process. I have had about 7 different social workers already which is very hard for me. I have difficulties processing so many different people and social situations. It affects my understanding of what is going on and makes it harder for me to make informed decisions.¬
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I have test results that shows I am unwell, although I do not believe I am fully diagnosed. I would like eventually, when misunderstandings been resolved, to have the serology testing that you offered me. It was misunderstood that I declined all serology testing. I only declined testing for Lyme disease as I’ll be paying for this myself. Serraspot and Elispot testing for Lyme are known to give more accurate results. Please can I, in time, have serology testing?¬
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You believe M.E is a physical illness, but I do not think you understand or believe the full extend of how badly it affects me. You noted that my ECG was likely elevated due to stress. M.E is known to affect the heart and breathing. You also said it was inappropriate for me to ask you for CCG funding to allow longer appointments to communicate with SALT. I disagree that it was inappropriate. ¬
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M.E affects how I process information and under time pressure I can process incorrectly and then respond inappropriately which is partially why I need carers to support me with communication. M.E affects how I process information and under pressure I cannot process my understanding correctly given in a short amount of time, only to respond inappropriately which is partially why I need the people that assist and support me with cooperative communication. This is partially why I do not respond well when I am putunder in a position where I feel pressured to make decisions quickly, such as the words I speak or manner of how I do it. This happens most during 2 way speech interactions. M.E can make me come across as offensive and has resulted in personal relationship breakdowns .¬
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We believe I have aspergers. Please can we arrange a meeting with yourself, Debbie (who is also a disabilities nurse), my mam and sister to discuss this? I think that the cognition struggles amplify aspergers and make it even harder to express myself appropriately. I can become very overwhelmed and distressed from sensory overload and time pressure to make decisions quickly, such as the words in the way I speak. This happens most during 2 way speech interactions. M.E can make me come across as offensive and has resulted in relationship breakdowns. ¬
¬
We believe I have aspergers. Please can we arrange a meeting with yourself, Debbie (who is also a disabilities nurse), my mam and sister to discuss this? I think that the cognition struggles amplify aspergers and make it even harder to express myself appropriately. I can become very overwhelmed and distressed from sensory overload and time pressure of processing language and this all overloads me. Even the amount of visual stimuli in my room has at times caused meltdowns. ¬
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You have said you do not understand my test results and could not offer the support I needed. Please seek guidance from Dr Myhill to learn about the test results and their implications. Without understanding my test results, I am being left in a dangerous position. Without NHS being able to understand my test results I feel unsafe and that you do not know how best to support me and nor does anyone else in the NHS.¬
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Yours sincerely,¬
Jessica
Thank you for all your time and help @Yorick it’s been really helpful!
Thank god I have people helping me.
Perhaps it’s best not stating which relationships have been broken down until having a face to face appointment. If the disabilities carer is there at aspergers appointment then she can talk about how even me and staff have had misunderstandings before and time taken to understand. Atleast then GP will not have those carer misunderstandings in writing so would not be able to use it against us.
What do you think?
Even phone calls are recorded and I can’t risk making my carers look bad.
I think it looks good! Here is a version that uses a few less words. I just removed a few things that were redundant.
Dear Dr,
As you know I have cognition difficulties and struggle to have multiple people in my care. There is no discrimination. I had requested to have one nurse. Having new carers is a very difficult process for me. I have had about 7 different social workers already which is very hard for me. I have difficulties processing so many different people and social situations. It affects my understanding of what is going on and makes it hard for me to make informed decisions.
I have test results that show I am unwell, but I do not believe I am fully diagnosed. I would like eventually, when misunderstandings are resolved, to have the serology testing that you offered me. It was misunderstood that I declined all serology testing. I only declined testing for Lyme disease as I’ll be paying for this myself. Serraspot and Elispot testing for Lyme are known to give more accurate results. Please can I, in time, have serology testing?
You believe M.E is a physical illness, but I do not think you understand or believe the full extent of how badly it affects me. You noted that my ECG was likely elevated due to stress. Research supports that M.E is known to affect the heart and breathing. You also said it was inappropriate for me to ask you for CCG funding to allow longer appointments to communicate with SALT. I disagree. M.E affects how I process information. Under time pressure I can process incorrectly and then respond inappropriately which is partially why I need carers to support me with cooperative communication. This happens most during 2 way speech interactions. M.E can make me come across as offensive and has resulted in relationship breakdowns.
We believe I have aspergers. Please can we arrange a meeting with yourself, Debbie (who is also a disabilities nurse), my mam and sister to discuss this? I think that the cognition struggles amplify aspergers and make it even harder to express myself appropriately. I can become very overwhelmed and distressed from sensory overload and time pressure of processing language. This all overloads me. Even the amount of visual stimuli in my room has at times caused meltdowns.
You have said you do not understand my test results and could not offer the support I needed. Please seek guidance from Dr Myhill to learn about the test results and their implications. Without understanding my test results, I am being left in a dangerous position. Without NHS being able to understand my test results I feel unsafe and that you do not know how best to support me nor does anyone else in the NHS.
Yours sincerely,
Jessica
Thank u @Lawn lovely 😊
That does read abit easier
J think i might add -
Research supports that M.E is known to affect the heart and breathing.
Good idea. I updated my reply to include that.
Eeee my goodness. Im so stressed. Ill have a nervous breakdown one of these days
I need to write a letter to my social worker too yet.
And i have to have carers write them out because if i write letters then no one reads them and i need carers to bare witness to what is going on
I need carers to monitor me and how they treat me
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